Not too great today

Had a very fun and full weekend. The runs are back full board. I don't understand what I am doing wrong? I hate having to call Dr again and say 3rd antibiotic isn't gonna cut it either. But it is at the 2wk mark and I am weak and not feeling good. Just want to close my eyes and go back to bed. Not sure if I should stop the meds all together then start back after vacation. Feel like I really need to clear this mess up. Probably should get to Publix and get more yogurt. Blah lol

Well another med I can not take

Had to stop taking the azithromycin as the severe stomach cramps and diarrhea were unbearable. I just think I will not be able to take any drug with mycin. I really am leary about taking anything other than the doxy right now. Give my stomach some time off. Also weaning off my blood pressure med. The doctor that I was seeing to get that med I no longer see and quite frankly do not care to see anymore doctors other than my Lyme dr. Going to try and manage it with diet and supplements. Hoping I am doing the right thing. Otherwise feel ok and going to try to get back to walking this week.

Thought I was on upward swing?

Had a break from the stomach pain and runs for a day and a half then they came back with a vengeance. I wonder if it is from milk? I made mac n cheese yesterday and we also had frozen yogurt. I can't figure out what else it was from unless it was from beer? I am just so weak and tired from all this. And burning up. All the time. I know it is summer but before taking all these meds I was freezing all the time. haha. Why can't I have a nice normal temp not the two extremes? Ah well. Had a bad night last night and hoping that I can get a nap this afternoon.

New meds for me yippee

Well the trip up north to my LLMD went off without a hitch. Flew by myself, rented a car and drove from Ohio to PA all by my little self! And I didn't get lost. But the credit goes to God and the GPS. Told hubs we needed one for my truck. I plan on traveling up there by myself starting next year and it would make me feel tons safer. Anywho seems I tested positive on the IGG test. I think this test I actually will be counted for in my state towards person who has lyme. I could totally be mistaken but anyway this is 3rd test that says I have Lyme so pretty safe to say I really have it hahahaha. But the good news is no co infections which is really unheard of with Lyme. I am so thankful believe me!

I have been put on 250mg Azithromycin twice a day along with still being on Doxycycline at 200mg twice a day. No side effects so far. Think I am herxing from the Azith. Have rash back on stomach and horrible stomach pains. Really hope that goes away. I really need to get back to walking daily on treadmill. I have been so sick for many months that it is hard to even get up out of bed or the couch. But here is to upward and onward!

Pain is very bad

I have had neck and shoulder issues in past but they have really flared up since I have started back with the antibiotics. Was reading tonight how pain between shoulder blades and beneath shoulder blades is a typical toxin storage place. Yipee for me. But also that pain in this area can be from gall bladder. Good grief. It feels so inflamed right now. The shoulder that is. I hope that I can sleep some. I am exhausted.

Stomach pains from hell oi vey!

Good grief. Been up and down all night with horrible stomach pains. Also alternating between hot and cold sweats. Wake up still sick at stomach and eyes hurt. Eyelids are swollen. Yipee. That was something that had gone away but now is back. I expect all the weird symptoms to come back as I am herxing. It is to be expected and I am trying not to get discouraged. I have a life to live and I have things to do but all I want to do is sleep from this bone crushing fatigue. I pray to God to get me through today and protect me as I travel around town running my errands. Amen!

Looking in mirror and don't like what I see

The dark circles under my eyes are really bad. I haven't looked like this in a long time. I am exhausted and all I want to do is sleep. The doxy is really killing the bugs and making me herx. The neck and back pain are at times unbearable. But just have to push through and hope eventually it will get better. Or at least that is what I am telling myself lol

On to the next antibiotic

Well the Biaxin was a bust. Severe runs. Not fun. So now I am on 200mg 2x a day of doxy. This is day four and I have hit the herx wall. The fatigue is horrible as is pain and damn leg spasams or what they call restless leg syndome. Have had it off and on and my dad has it but it really was bad tonight. Hope to get some sleep as last couple nights haven't been too great. I know the herx is the sign that its killing bugs and all that happy horsecrap but I felt pretty good on the Biaxin now just feel like crap. I have so much to do as we are having stuff done to house and I need energy to get through the next couple of months. I guess it will all work out as it usually does. Look forward to LLMD visit this month to see what else if anything they have found from my tests.

So I wonder how long this will last?

I have had diarrhea since Monday. I started Biaxin on Saturday so I am assuming that is the reason. I just wonder how long I am suppose to wait till I call dr or stop meds. I don't want to quit maybe it will go away?

Went to beach on Tuesday and I guess being in the sun caused me a lot of trouble. Got a headache and had to pack it up after couple hours and leave. I had hat, sunscreen and plenty of water. Didn't get sunburn at all. The trip home was horrible. All I wanted to do was close my eyes and go to sleep. In fact when I got home I went to bed. Passed out for hour or so. Next day I was so tired and weak. I don't know if it was from the Lyme, thyroid issue, or new meds. Will have to make sure I tell Dr about that.

Feel a little better today. Just hoping that the runs will stop a running haha

Well stated antibiotics again

2nd try treating this Lyme. I am on clarithromycin 500mg 2x a day. Started on Saturday so probably too soon to say ya or nay! lol So far seems like fatigue is better but don't want to jinx it. Have a coppery taste in mouth, which is a side effect, and today the runs have started. Again not sure if its herx, something I ate, or what. Being on antibiotics really scares me and having the runs. Can even kills you. Wouldn't that be funny?? The shits kill me instead of the lyme ahhahahahah. Ok you have to laugh. Besides what other options are there? No other side effects so far. Really hoping it clears up my face too. Tired of looking like a teen. UGH!!

So weak

I don't get what is happening to me. The fatigue and the muscle weakness scare me. My grandmother had Mysenthia Gravis so that is always in the back of my mind. Although Lyme can cause the muscle weakness as well. Need to get my act together for next week and find place that will draw my blood and give me back a vial. Oh plus the pesky problem of paying for all this testing.

Dr keeps calling my husbands cell phone where I had my Cat scan done. They want to send me to ENT but I would rather go to one of my choice. Did search on who they want to send me to and the reviews aren't pleasant. Hopefully they don't want to do biopsy on the glands. The reason they are swollen I am sure is due to the Lyme but since the normal DRs say I don't have Lyme there really is no reason to go back to them. This whole thing is nuts. I would never tell them that I was getting treated out of state for it either. In fact I probably will keep my drs name secret as well. I don't trust anyone. Maybe I am paranoid but TPTB don't want you getting well. That is just my opinion so take it for what it is worth. Ok enough doom and gloom.

Hope to get on antibiotic first part of May and really hope there are no bad side effects. Oh can't forget to get my probioitcs before I start taking them. At the tune of 100bucks per month. Grrrr. Ok stop worrying everything works out right??

Weird vivid dreams

Not sure why and what is causing them as I am not on any prescriptions right now other than blood pressure meds. Been on those for many years now. So I dream last night that I murdered 2 people. In my dream I knew them but in real life no one I knew. And everyone around me was trying to cover it up in the dream. I was getting really frustrated cause I knew it was wrong and I wanted to go to police to report the crime. I knew I was gonna go to prison but I rather be in prison than have the guilt. Maybe it reflects what is going on IRL with some guilt I have over family members not able to pay their mortgage due to job loss. And all the good blessings that have been bestowed to me and DH. I don't know. Really tired of the vivid dreams though. Seems they are getting more and more frequent. Not sure if it has anything to do with Lyme or not. Or just some weird side effect of getting older, maybe hormones. Not sure. Will have to ask DR again when I see him in couple of months....

Really hate this disease

I hate how some days you are ok then other days what in the world happened. Today of course both my hands do not want to work. They are both numb and to say its difficult to do anything would be an understatement! Making breakfast took forever. Then I grab up my pills to take and must have dropped my blood pressure one cause I put them down on table and its missing. I look everywhere for it worried one of the dogs took it. As I am heading back to den, praying, I look down and there it is. Thank God!! Someone indeed had it in their mouth but had spit it out. I am pretty sure who had it and just glad they didn't ingest it.

I have so much to do inregards to my treatment. I need to call around and see who will draw my blood and give me vial back, do MRI, and need to drop off my prescription for the antibiotic. Oh also need to call about ordering Probioitcs. Will have to do all that tomorrow I guess. Heading out to vet and it just takes me forever to do the simplest things. Last several days have felt like I am walking through molases. I really dislike that feeling.

Hello

Thought I would start a blog to document my progress during my 2nd attempt at treating my chronic Lyme. I have a odd sense of humor and sometimes can be dark. So if that offends you might want to go elsewhere. But I am always truthful and won't sugar coat things. I find a lot in the Lyme community tend to do that. And I would never blast someones choice or non choice of treatment. Very personal decision I think. Heck I took almost a year off from treatment. I think you have to do that to keep your sanity. Anyway will try to post as much as possible. Thanks for looking and reading!